The
dialogue between health care professionals and patients is essential in the
management of illness and health related questions. Jan Frich, doctor at the
Neurological department at Oslo university hospital and professor at the
University of Oslo made a thoughtprovoking speech at one of the hospital’s Friday
meetings.
”The existential meaning
of illness is probably negotiated differently now than how it was in earlier
times. Meetings with health personnel, reading of literary texts, and exchange
of patient organisations, blogs and other social media are among the many
venues where the individual is seeking answers. What characterises the stories
of illness in our time? What role do we have as health professionals in the
patient’s quest for meaning?
In the face of threats is
the basic human need to search for meaning. Through the sharing of events or
situations, individuals can present their own experiences and establish an understanding
of cause, blame and responsibility: what is the reason that I became sick now?
Managers don’t always have good answers to questions like these, and it’s not
always certain that a medical explanation will make sense to the patient.
Sickness will also often challenge a patient’s identity: who am I now that this
has happened?
Illness has a major place
in the life of modern man, and many people publish stories about their own
experiences with sickness. Such autobiographical accounts may become the key to
how others interpret their own situation, and can also affect how a patient
copes with their sickness and how they interact with health services. It is
important to consider that those who publish books or write blogs are possibly
more resourceful than many other patients, and so their experiences may not be
valid for everyone.
Health personnel can be
assigned the role of hero, ally or enemy in each patient’s story. Clinicians
wander in and out of such stories every day and they are assigned different
roles in the accounts of chaos, war, or during the journey into the landscape
of the sickness. A sensitivity to how each person experiences their own
situation could improve communication with the patient.
It is important for
clinicians to recognise that hospital patients will be involved in meaningful
and existential “work” that takes place parallel to the professional work. The
hospital can help to strengthen the individual patient by allowing them to put
their experiences into their own words, and by creating places where people
that have been in the same situation can meet and exchange experiences.